I tic. All day. From the minute I wake up until I can sleep. This has been the case since I was seven years of age and cannot remember a time when I have gone five minutes without a compulsive bout of movement or tension. I have ticced until nausea. I have ticced until my finger has dislocated. My insides tic. My outsides tic.
There is no blood test, biopsy, eye test or stethoscope that tests for it and as yet no neurological imaging. The diagnostic criteria is plain for anyone, and requires no verification when you know what's happening to you, when the people you know tell you it's happening.
I have been attending a number of lectures with the title of Stress Control. I have issues with stress, more accurately the anxiety response to average stress. In a room of 50 people, you optimistically settle down for the words of wisdom developed by a specialist team in a designated mental health facility.
Instead what follows is a half-baked PowerPoint presentation with all the merit of a 10 year-old's history project, with the spelling and grammar to embarrass a 10 year old, recited in a stuttering and most uninspiring tone by the textbook counselors - and if you think that's an advantage, it is not. I always wondered if these people realised just how hard it is to watch such a presentation, for those of us with compulsive, clinical and obsessive perfectionism.
To get to this point I had to start with a GP, who couldn't identify an uncommon but distinctive condition, despite having "a special interest in mental health"; who believed my condition was only identifiable by loud outbursts of profanities, despite the bona fide fact that only 10% of people with this condition exhibit compulsive swearing.
A substantial 4 months later, I find myself in the neurology unit of the largest hospital in the region. The doctor is late. Thankfully my partner's by my side, we're sat in a bustling corridor waiting area. He holds my hand which tries to thump my thigh repeatedly.
My reward for this is a neurologist that with distinct lack of luster suggests that this was something that was part of me and that I should try and accept it as it its in my life. That which he spoke of laughed maniacally in its hovel in the back of my brain, the significant remainder wanted to rather loudly explain how if I was happy with the way it was that I was unlikely to be sitting in front of him, desperate for a diagnosis to move forward with. I didn't get it. What I did get was another referral.
Another three months and another corridor chair and I'm sat in front of a friendly if wild-eyed psychologist. But he was already in my good books for shaking my hand, asking how I was, and waiting sincerely for a reply. He went on to give me one of the best quick tools in dealing with rushing, disruptive thoughts - I can go into this utterly simple tool in more detail if requested. I eventually felt at ease with this doctor, who was thoroughly himself. It was plain to see that he used intuition and experience, not a script, not complete bull. The first to make me feel like a human being.
I attended a follow-up visit with this individual which was positive, by this time I had just started a new job, which had made some dramatic improvements to life. He still allowed a referral to an outpatient mental health outreach centre for Cognitive Behavioural Therapy. And you know the rest.
I was on a waiting list. Again. But no more. Please no more. I bid you adeu, N.H.S, for it's taken an absurd 18 months up to now and I still have not received formal treatment. Time to take back control, whatever the culture or creed of the psychological method.
